At some point, I’ve been wanting to write down my reflections and intentions for the New Year. Deadlines usually work for me. Jan 1st or Three Kings Day (Jan 6th) would normally be my go-to deadlines. But not this year for some reason.
And therein is one of my key reflections for the New Year. Create space for both creativity and efficiency. As an Industrial Engineer, I understand process and project management. That’s a strength. So, for me, find balance – but err towards strengthening my more creative, unstructured, passionate self. So I missed a deadline – so what. But, I feel inspired now to write – so this was the right moment after all. So much for my perceived level of control…(mini-truth – serenity works!)
Which leads me to a deeper intention. I want to live more deeply in the grey. Everything in life is negotiable, except death and taxes. There is less right and wrong, less black and white. There are also times it’s worth taking a risk – whatever that means in the moment. So relax a little. I can choose to be right or be happy – I choose to be happy and to value relationships more than being right. (Easier said than done…but it’s a start!)
And I’m reminded of sayings from my past:
Never underestimate the power of a question
Never do for others what they can do themselves
Perfection is the enemy of “good enough”
Ok enough platitudes and bumper stickers…
As for 2016 and 2017? Last year was about starting the process, launching new ventures, and having the baby. This year, it’s about focus. And lots of growth, learning, hard work.
And learning seems to be my new reality.
I’ve struggled with this learning curve shit in the past year. I came to the realization that for 20+ years in corporate America, I had invested the time into a career, the results of which were knowledge, experience, peer recognition and advancement. (And money. And identity. And no soul).
Now, as I start my second career in two different areas, there’s been a lot of soul-searching, self-discovery and growth. I’m drawing on a lot of experience in technology, project management and photography…sure. But, doing this “on my own” is SO new to me! I’m facing a constant and daily learning curve. The devil is in the details, and it takes time to gain experience and to hone a skill, a proficiency into a professional and profitable business. And, for me, that’s been humbling, frustrating and fearful – and sometimes a barrier to my own progress.
For my own reasons and needs, I’m choosing to write this because I want to be able to look back on this in 5 years…and be able to reflect on how far I will have come by then. I want to see the growth – but always remember that there has been rough times getting there. Things have been scary, hard, overwhelming at times. I feel useless and stupid sometimes. I feel old and beaten. But, I’m living through those moments and gaining momentum. And it feels great. And sucks. At the same time. And, I’m also learning so much more about myself, my thoughts, my beliefs, and my strengths. And it is also bringing me joy, freedom, hope, inspiration and fulfillment. Ultimately, this road I’ve been on is finally reconnecting me with the real me – which is fancy way of saying even more learning!
So yes, learning is my new reality. But, if I can live through my fear, the journey brings life. There is no destination…which used to scare me, but now brings a sense of relief.
I’m tempted to write about the a-ha’s along the way. The conversations I’ve had that have moved me. The new insights, or tough lessons… But the details are less important. Just remember – stay strong. But, do remember what a lady in pink taught you… And remember the connections you made in your first shoot – how they shaped the lens through which you see yourself in the world. And remember that cancer sucks. Even a lot of it.
In closing, I share my “Stay Strong” playlist. When life gets me down. When a friend betrays me. When I betray a friend. When the waves come. When doubt enters the complex mind. These poems have been one of my anchors this past year.
I’ve reflected a bit on Memorial Day this year. It’s been a mixed bag – but there was one gem to come from my reflections.
I’ll break my college writing class, and cut to the chase.
As I reflect on what Memorial Day means to this country, it’s about celebrating those who lost their lives in service to their country.
I want to create a movement called Recovery Day.
It needs to be in September because of National Recovery Month. To not have it confused with Labor Day, I’d propose the final Monday**. Conceptually, it becomes similar to Memorial Day’s purpose, though uniquely focuses on those lost their lives because of mental health or substance abuse disorders. With addiction and recovery, the US War on Drugs contributed to our current situation and must be shut down, giving way to a new executive order.(***)
Recovery Day is the final Monday of September each year. It recognizes those who lost their lives because of mental health disorders, including substance use disorders (also known as addiction.) We honor the veterans(^) who fought their personal battles to overcome their problems and advance recovery opportunities for all Americans.
Part of the celebration around Recovery Day includes telling people’s stories, so they are not forgotten. We see this all the time on TV or on the radio (*), where comrades or family or friends share a memory of their lost hero. With Facebook, YouTube and other social media tools, it’s even easier for memories to be shared, creating a common bond connected to some of our deepest yearns – to celebrate life, to be interdependent one with another, to find connection, to find meaning.
Recovery Day is borne out of a desire to honor our dead in the United States of America, much like we do on Memorial Day for those who gave their life in service to their country
Executive Order: National Recovery Day
We request an Executive Order from President Obama, declaring something similar to:
National Recovery Day
The date of National Recovery Day shall be the final Monday of September each year. It is designated for the purpose of strewing with flowers, or otherwise decorating the graves of fellow citizens who lost their lives during their battle with mental disorders and/or substance use disorders and whose memories live in almost every citizen’s heart, in each family tree, in our community memories, or in our nation’s collective memory.
It is the purpose of the Commander-in-Chief to inaugurate this observance with the hope that it will be kept up from year to year, while a person in long-term recovery, family or community members remain to honor the memory of their departed comrade. The Commander-in-Chief earnestly desires the public press to lend its friendly aid in bringing to the notice of comrades in all parts of the country in time for simultaneous compliance therewith.
In this observance no form of ceremony is prescribed, but communities and individuals will in their own way arrange such fitting services and testimonials of respect as circumstances may permit.
Hear ye, Hear ye:
Whereas our current understanding of our Nation’s War on Drugsis that it has been damaging our country since its declaration in 1971;
Whereas our nation lacks broad understanding and community surrounding issues of physical, emotional and mentalsafety and wellbeing;
Whereas mental and/or substance use disorders often show up in multiple diagnoses for the same person;
I do declare that a new day has come for our nation.
Another voice of remembrance is needed to bring deeper understanding, healing and connection as citizens and neighbors.
This national voice of remembrance is needed because:
I believe those who lost their lives during their battle with mental disorders and/or substance use disorders are veterans of our great nation;
I believe their journey of recovery was personal, though it draws upon common needs and principles to support a life in recovery;
I believe their recovery was a process of change through which individuals are improving their health and wellness, living a self-directed life, and striving to reach their full potential;
I believe their battle was daily, overcoming and managing their disease(s) or symptoms, … making informed healthy choices that support physical and emotional wellbeing;
I believe their battle has been having ripple effects into our families, communities and society at large; like an iceberg approaching our nation’s shores, we must seek to more fully understand the full impact the adverse effects of these diseases are having on our society.
In this observance no form of ceremony is prescribed, but communities and individuals will in their own way arrange such fitting services and testimonials of respect as circumstances may permit.
Background & Supporting Concepts
Recovery, Recovery Coaches and the War on Drugs
Those with substance use disorders in particular have been been fighting their own personal battle on a larger national battleground, created when President Nixon declared our nation’s “War on Drugs.”
In 2014, President Obama’s Administration issued a national blueprint for drug policy. This Strategy calls for drug policy reform rooted in scientific research on addiction, evidence-based prevention programs, increased access to treatment, a historic emphasis on recovery, and criminal justice reform.
It’s time for more people in long-term recovery to come out of the closet… We’re hurting our own cause, our own acceptance, our own sense of shame.
Building on its success and our collective understanding of the twelve step recovery movement, thinking up until recently is largely steeped in the experience of the twelve step recovery movement. One can not argue “the steps” have helped millions of individuals recover their lives and their personal self-worth. However, recent thinking and research is helping us see the limitations of anonymity-based personal growth.
The “secrecy” around “the rooms” fuels shame and does nothing to help improve public opinion or to reduce the societal stigma of being of suffering from a substance use or mental disorder. The traditions and steps, as many understand or interpret them, strongly discourage “coming out” in public as someone in recovery for some very important and historically valid reasons. However, we’ve not made as much ground as other sub-cultures who have been wrestling with inadequate civil rights. Some or our “sister movements” are not as old as the Twelve Step movement that started in the 1930’s. We’re already seeing that we can find language to tell our story that both honors the traditions of the twelve steps while giving a “face and voice” to recovery. If we look to some of these other movements for ideas along with the current shifts in thinking, I believe we can make much more tangible and long-lasting changes, building on the work already done by many, which I’ve tried to include generously herein as links.
The Cost of Anonymity
To understand how much this culture of anonymity is hurting us, one only has to look at the gay rights civil movement. It started to gain momentum in the late 1950’s with the Cooper’s Donuts Riot, gaining its long-term momentum in the late 1960’s with theStonewall Riots.
The journey of LGBTQ citizens, from the shadows of our psych wards, through the Stonewall riots, to current day is a powerful “rise to inclusion,” though like any civil rights movement, change is slow and unpredictable. But, hindsight gives us hope and encouragement that we are making a difference, one closet at a time.
Men and women who are gay, lesbian, bisexual or transgendered are now visible and recognized in the US by most major church denominations; we are sitting in the boardrooms of major corporations; we are running local “mom and pop” cakeries and bakeries. More importantly, for many reasons including changes in laws by Cities, States or at a Federal level, we are clearly seeing changing attitudes towards gay marriage.
Understanding the Disease, Recognizing Heroes, Finding a Cure
Like any disease, mental disorders and/or substance use disorders do not define individuals, their limitations nor their successes. Much like veterans returning from combat, their recovery is a process.
Like any disease, our understanding and knowledge of its causes, symptoms, treatment methods grows with science and technology. We use that to improve prevention, diagnos(es) better treatment(s) and better quality of life for those living with the disease.
But on a larger scale, our Nation’s “War on Drugs” did more harm in the long run. Our country owes these veterans both recognition for their service, along with a new national focus on finding cures for these chronic conditions. Similar to finding the cure for cancer or HIV/AIDS, there are two sides to this “holy grail.”^^^
The Federal organization that is very much leading the way and setting the tone for behavioral health care and recovery is SAMHSA (Substance Abuse and Mental Health Services Administration). SAMHSA has developed a working definition and set of principles for recovery. A standard, unified working definition will help advance recovery opportunities for all Americans, and help to clarify these concepts for peers, families, funders, providers, and others.Their Recovery Pamphlet can be found here, including a working definition of recovery and “10 Guiding Principles of Recovery.”
In addition to these efforts, I agree with SAMSHA’s position in their Recovery Pamphlet that we must also continue to work to expand health insurance coverage for treatment and recovery support services. I also believe we need to overhaul our healthcare system, and continue to expand the concepts of access started in 2010:
We must continue to address gaps in availability, affordability and access to services, enormous strides in which were made with the 2010 federal statute known as the Affordable Healthcare Act;
to be better equipped to honor the many “spheres of recovery” and to share their stories (individual, organization, community and government based)
How can we stand up for our rights while honoring the anonymity tradition of our twelve-step groups? This is a great publication (Indiana) with practical information, tips and resources. (click link or thumbnail below)
Footnotes and References
* – well, if you listen to something with more content like via our public airways like PBS – whether through TV, radio, podcasts, video blogs, – or my new favorite, Ted.Com (an app on many smart TV’s)
** -in line with how similar holidays are defined, but not to be confused with Memorial Day, Veteran’s Day, Labor Day, etc.
*** – another thought would be to combine this into one declaration. It recognizes those who lost their lives because of the diseases of mental health and addiction. We honor these heroes and veterans because they somehow maintained hope, connection, and meaning in their lives in spite of and often because of their illness(es). They were able, in their own way, to celebrate their autonomy, their own beauty, and their sense of belonging and contribution to life. Their legacy inspires us to create places of belonging with safety on all levels (physical, emotional, sexual, spiritual, emotional). These micro-communities create connection, interdependence, meaning and autonomy. They practice compassion, hospitality, inclusion and empathy as a way of encouraging reflection, trust, self respect, and self-expression.
“A veteran (from Latinvetus, meaning ‘old’) is a person who has had long service or experience in a particular occupation or field.” (source link)
It goes on to only further define military veterans vs. war veterans, and military conflict vs. wars. This helps to understand the complex layers – and we’re potentially going to add another one. But, is that any different than these rare but otherwise great examples to follow, where elected or appointed leaders have stepped in and made a declaration on behalf of the nation, to find connection, vulnerability, and healing but focuses uniquely on military veterans. In this same sense, Recovery Veterans become another way to further refine the broad term we use as “Veterans.”
This page refers to military veterans, i.e., a person who has served or is serving in the armed forces. Those veterans that have had direct exposure to acts of military conflict may also be referred to as war veterans (although not all military conflicts, or areas in which armed combat takes place, are necessarily referred to as wars).
^^ I give credit to a lot of content I’m quoting from SAMHSA’s Working Definition of Recovery. They make this an many other useful tools available at a price and/or free of charge. They do require you create a login name/password to use their store. For that reason, I can’t provide a “working link” to their password-protected documents. They will link properly once you create a login and stay logged into their site while clicking any links in my blog.
^^^ – Let’s not kid ourselves. Having worked for 19 years for a Pharmaceutical company at a mid-level global management position, I never even heard an inkling or whisper of what is on everyone’s mind:
“how do pharma companies rig the game so cures are funded half-seriously purely for good-will, knowing full well that Pharma’s income stream and high profits are because of the free range they have on pricing in the US? We are the last major (or probably minor!) country that does not regulate human and animal pharmaceutical pricing. “
In that world, they have massive incentives:
to focus on medications that provide patient relief from chronic symptoms
to find better treatments for known diseases
to create medical need – creating medical support for new treatable conditions, which of course require the discovery of new medicines to treat their symptoms
All of this is threatened by a single cure.
I’m working on a time-value of money decision analysis tool that helps calculate hypothetical but representational samples of a product’s unit cost combined with various pricing strategies, and using this “NPV” or “EVA” calculation to compare to a representational sample of bring a vaccine or cure to market. I think this will explain why Pharma companies don’t ever have to “whisper” their evil plan. Good decision analysis for their projects will implicitly kill the “cure option.” But, just like valuing the “do nothing” option, our FDA must ask Pharma companies to show their analysis BEFORE approving new symptom-based options (when one or more viable options are on the market.”)
Last year, I started a practice of pulling together my “brand” – to help identify, and guide, focus my personal energy. It’s a bit like an organization’s vision, mission, objectives – though there is more of a focus on “why” and “how” I go about living and who I am, than “what” I do. I focus less on uber-efficiency and more on being mindful of my EQ (emotional quotient), less on hyper-productivity and more on living with passion, less on operational scale and more on being more fully present in each moment.
It worked pretty well for me in 2015. As I entered 2016, I didn’t see much changing in the “why” and “how.” But, some of the “where” and my focus has evolved with time…or become more defined. So, I thought I’d give an update.
1. I arrived at a “tipping point” in 2015, where I needed to face the reality that I needed to secure a reasonable but stable income while still allowing time for a balanced, playful life in community. Or as dad says, “get a steady job.” I considered continuing to look for working “for the man” – but have come to enjoy my balance, flexibility and autonomy. This leads to the next decision…
2. I’ve decided to put a lot more time, energy and intention into realizing my two business ideas:
My intention is to meet my need for steady income (I got a job, dad!) while also meeting a community need for value-driven technology support for local businesses. Some of this is explained better here…
3. I continue to have a passion for community work, particularly in the non-profit sector in areas of social justice and inclusion. So my work shepherding Candlestick House, Time Bank Indy and working to support the Friends of Indy Media Co-op’s Tool Lending Library will continue. I will need to prioritize more time towards my business efforts and do less pro-bono work. But I’m still engaged here for some balance and variety.
4. Our intention is to remain in Indianapolis until 2017, and more likely the first half of 2018. This is driven by a variety of factors – schooling, small business startup, or other milestones. But, our mid-term plan is still to move to N.C. for warmer weather, ocean and mountains, grits and sweet tea!